Latest news

They AREN’T going to plump for surgery as the neurosurgeons think the spacing of the three lesions covers too much ground so it’s not viable. Radiotherapy is going to be the way forward, I have to wait to see Dr Hamilton tomorrow morning to find out what the plan of attack is but probably something like I had on my head (ten days of average doses of twelve minutes a time).
They are fairly confident it will at least halt, if not shrink the lesions and give me most, if not all of my leg mobility back. They are pleased with my current leg strength and how I am responding to the steroids up to now.
I have a catheter (wee bag) in at the moment as the spine problem is refusing to acknowledge when I have to have a wee, they don’t know if this will change after I have the radiotherapy.. I may have to have a bag strapped to my leg permanently but as long as I don’t wear jeans quite as tight as I used to I should be fine… more positive than negative but they just can’t be sure and it’s a small price to pay for a life extension.

I feel a little more confident after what has happened the last few days, I don’t think I’m going to die any time soon so that is a definite bonus!

2 Responses to “Latest news”

  1. Fiona (Gem's sister) Says:

    I spent a month once with a catheter bag strapped to my leg. You’re right about the tight jeans though; trying to adjust the bag when it’s full and you’ve got the wrong leg-wear on is very amusing/tricky!! But it makes for a wonderfully easy night out as far as trips to the loo are concerned!

    Thinking of you all, Fiona. x x

  2. Marc Says:

    Already I can see the benefits, saves having to get out of bed when I’m lazing watching TV! Mine only holds a pint though so after a few beers it is going to become a bit of a burden I think!

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